Having to explain, over and over, what celiac disease is.
Not being able to eat most canned, bottled, frozen, and pre-packaged foods.
Not being able to eat at another person’s house, in a restaurant, or travel without worrying about getting sick.
All the other food intolerances that developed because of being celiac.
Having to carry my own food with me where ever I go.
Being diagnosed with osteoporosis at the age of 37.
Having to pay exorbitant prices for the few processed gluten-free items of food I can eat.
People saying, “You’re lucky you can’t eat cookies (or cake or pizza or bagels or beer or whatever), you won’t be tempted by this” as they stuff their faces in front of me.
Having a higher than normal risk of diabetes, neurological problems, and intestinal cancer.
Knowing that there are thousands more people suffering with this disease that will go undiagnosed for years because of the medical community’s unwillingness to accept that 1% of the population has this.